Cuts Watch: Tell us your story

Please help us by speaking out on what is happening in your area. 

Your story will help us see what’s happening across the country and counteract cuts to services that people with MND rely on.

Complete the form below to add your story to the map.

Please note your name or any personal details you provide will not appear on the map, or anywhere on our website.

Your Details

Your name

Your postcode*Will be used to plot the map pin

Are you responding to this survey as:

a person with MND

a carer of a person with MND

a family member/friend of a person with MND

a professional working with people with MND

MND Association volunteer

If you are a volunteer or a professional, please specify:

What service would you say the cut has affected?

Continuing Healthcare

Wheelchairs

Access to health and social care professional (including specialist nurse/key worker/MDT)

Palliative/end of life care (including emotional support)

Respiratory support

Communication aids

Orthotics

Access to neurology

Occupational Therapy

Disabled Facilities Grant

Social care - Eligibility criteria

Social care equipment and adaptations

Carers assessments

Respite care

Care packages

Access to appropriate housing

Housing benefit

Attendance Allowance, Disability Living Allowance, Carers allowance, Employment Support Allowance (including Work Capability Assessments)

Other, please specify:

Service affected

Provide a short description of the service affected.*Tip. Services might include: longer waits for housing adaptations; longer wait for occupational therapy assessments; cuts to care packages; withdrawal of NHS Continuing Healthcare; etc

Is this a proposed change/cut? Or has the change/cut happened? Or are you simply unable to access the service, even though you need it?*

Has there been any local public consultation on the changes?

What impact has it had on you or people with MND/carers in your area?*

Future Reference

Please tell us if you are happy for us to use your story in our media work

Yes*

No*

Please enter your contact details if you are happy for us to get in touch with you and keep you up to date on Cuts Watch.

Name

Contact Email addressmust be a valid email address

Contact Postal address

This field should be ignored by legitimate enquiries